Desolation Row rocked the house at Sharkeys Sports Bar in Mt Morris! Thanks to the gang at Sharkeys! See you in August!
This is James and here is his story...
Dear Pub Family, I receive a lot of sad stories for holding benefits and they all hit me hard, but this one grabbed our attention, I ask that you all take the time to read James story. We are holding a benefit on April 6th, if you have a service you can donate for auction, a band that would like to volunteer, or even some cash you can throw in a jar, Please contact us at The Hope and Anchor English Pub 815-633-2552 Anything will and can help this family! Thank you! James Strong is 5 years old. When he was a baby he had a long term ear infection. Ear tubes were placed in with no results. In July, 2010, James under went many tests (including an MRI, CAT-scan, endoscopy and biopsy) at the UW Children's hospital in Madison. They found a tumor behind his right ear and he was diagnosed with Langerhans Cell Histiocytosis (LCH). LCH is a rare white blood cell disorder which is believed to occur in 1:200,000 children. It causes an over abundance of dendritic cells that causes healthy immune fighting cells to overreact and attack cells in bones and skin and major organs. It can only be fought with the use of the same chemotherapy treatments used in Leukemia patients. Within the first week James was diagnosed with LCH, he had surgery for his IV tube and started a very aggressive chemotherapy. James went into remission after 13 months of treatment in August, 2011. He enjoyed a whole school year in pre-K in which he learned how to interact with other children and life outside of the home. However, in June 2012, new LCH tumors were found in a routine MRI scan. He was also diagnosed with another rare disease called Diabetes Insipidus, which affects the balance of water in the body. James underwent a second port surgery in July and is now having 3 days of chemotherapy every 3 weeks. He is still able to go to school some of the time. However, we are unsure how long he will be on the treatment. With only a few charities helping us, since his disease is so uncommon, we ask upon our friends and community to help us to continue to give James the best care and treatments possible.
Sincerely, Cliff and June Strong